Thursday, November 13, 2008

把身體交給醫生,把生命交給上帝,把心情交給自己

嘿嘿... 一个月没更新情况了, 让大家担忧了。
新环境里, 医疗和生活还过得还蛮不错.... 化疗程还终算顺利当中。
只要能继续按照疗程就是很好很好的现象,所以就是很好很好咯。( 如果一切顺利程度,明年农历其间我应该可以完成疗程任务吧!)
哇!很快! 我的抗病路途已有9个月了。好了不起了!很幸运因为我从来没有被你们遺弃过。。最重要是家人, 亲友还有大家对我这个”瓜”的包容与宽厚关怀….还是那句感激,感谢与感恩..。
这些日子学习很多, 也感受很多但总算还是过得非常好.。。因为我可以还能可以慢慢享受另一种生活方式, 放心吧, 我也没有“吊儿郎荡”度日,只是还是按照我的”皇帝龙体的情况”来按部就班。。哈!
今天又进院疗程咯。。快乐时光来咯。。。。
从把自己变秃头….慢慢想留存成庞克发型(Trojan头)..又慢慢有Baby发质头…但现在它们好像又要向我说BYE BYE了, 感觉要脱落了….真是变幻无常.哈哈…..迟些我还是把自己变成光光头吧…….心情好就好!J…

13 November 2008, Thursday.

Monday, October 6, 2008

我回来了……

换了环境, 做了疗程也复了诊, 看起来一切好象都比想象中的好。身体状态还不错, 心情也好很多… 可能什么都开始要靠自己吧!前阵子给人照顾得太多太久, 所以人渐渐变得很懒散,什么都不想动... 所以就开始想太多吧... 希望那种不好的感觉别再回来那就谢天谢地了...
虽然这次决定并不能得到所有人的认同,但是目标还是一样要把疗程完成... 那我就不会辜负大家的期望和关怀。我不敢说这次一定会很好很好, 因为医学上永远没有人可以给保证!
放心,我还是会很努力; 积极的走下去....
很快的过几天我又要进医院做三天的疗程.... 这次和上次是一样的。所以该是没问题吧!

Tuesday, September 23, 2008

New environment

I had change a new environment and will be admitting to hospital today for chemo treatment. Wish everything will be alright....

Monday, August 25, 2008

累了!!

我开始累了!!开始放纵自己!!!还有9个Phase的疗程...我可以坚持下去吗??

Thursday, August 21, 2008

Undergo an operation next Monday

I will be admitted to hospital tomorrow and undergo an operation next Monday. 医生会在我的胸口上插一支管来方便下药,再也不用 “cucuk” from my hands…

我开始累了......


Monday, July 28, 2008

五个月了.......

五个月了……..我已做完第三个疗程了, 好久没更新我的情况;让大家担心了。在这第三疗程比较长一些也是加上了大家关注头部电疗(一共10次), 根据医生,这次的疗程和电疗是属于比较轻微所以应该没什么大问题的, 尤其是电疗(它只是纯粹为了避免我的白血病菌侵犯脑部)但我过得很辛苦很难过。。。。头很痛, 呕吐到好几天都吃或喝到东西连吞下口水也会吐.。。在此期间真的很难受,我不知道我能做些什么只知道我不能停下来, 一定要撑下去因为自己很明白我是没权力放弃也无路可退。
有些朋友都会问做了电疗,“还记得我吗?”我可以说一句话就是我想我没失去任何记忆,放心我还记得大家。。反而让我想了更多,连不该想的也慢慢侵占了我的脑海里.,,心情很差。想起我刚得知患上急性血癌时, 很多人(家人,亲戚,朋友,老师, 同事甚至有些不认识我的朋友。。) 都为我担心,给予支持和祝福,为我祈祷,还有一些浪费金钱时间精神千里来探望我. 。。。日子久了, 越来越多亲戚朋友知道我的情况后都纷纷也给支持, 真是”人间有爱”!!!不同是想不到既然发生在我身上。 开始时, 很多人担心我不能接受,会胡思乱想但在当时的我不觉得是什么因为这些病又不只是我一个人患上,加上也有很多人都能走出来所以并不觉得有什么好恐怖的, 我还一直强调自己很有信心能好起来。。。当中还有很多人都说我不像病人, 很勇敢。。也很多人应该也觉得我应该是”死顶”的吧。。。。果然不出所料时间真的能抹杀一个病人的心情, 我想该说声抱歉因为我并没有大家想象中的那么坚强,,,情绪慢慢陷入困境…心情变得非常沉重…要一匹 ”野马”突然间只能在等吃等睡生活, 长期5个月下去什么承受能力已经消磨七七八八了,顶不住了!。。唉.。。。
今天见了医生,她说这次骨髓报告还是在控制当中所以化疗还是对我说是有帮助的。但是另一个不好的报告也出来了, 我所有姐姐妹妹的骨髓没有一个适合我也就是说如果我需要换和找到骨髓的话, 风险会变得比较高。 但也不用着急因为我的情况暂时还不需要换,医生也答应会在适当时候联络新加玻和台湾寻找,现在她也不鼓励去寻找因为一切还是言之过早而且也不一定要换加上这笔费用也不少.。。一切就看天咯。。。换句话说我的10个疗程要慢慢享受了.。。明天要进院了接受第四个疗程了,大概要5天左右吧。。。快乐的日子又来临了.。。。唉, 别管啦, 反正这些“快乐”体验我还是要度过, 就等着瞧吧!

* 注:请别担心,虽然心情不能很舒畅但已经在抢救当中。。。所以也别太看小KV能力,深信他会好回来的.

28 July 2008
10.41PM.

Tuesday, June 3, 2008

一切都顺利

三个月了。。谢谢你们一直陪伴我一起度过。。。其实我比谁都来得幸运因为有你们。。一切都看起来还蛮顺利的。。。身体都很好,所以人开始也很闷了,要作怪了。。有时很想很想回到社工作,但想想一下那有那么容易啊。。。。嘿嘿。。。还是乖乖修养吧。。

出院都已经有半个月了,很多朋友都会问为什么BLOG没有UPDATE 的。原因是都没有什么好讲因为在期间我只在家吃和睡加闷吧了。但我身体状态已经可说好像普通人一样没分别。。所以NOTHING = VERY GOOD咯。。。 :)

今天看了医生, 我的骨髓和血球报告都很好。。。所以CHEMO对我的病有帮助。。另句话说要继续疗程。。。讲到疗程也有很多人问我到底还有多少次,我只可以答的就是如果顺利的话;在整个疗程大概有十三次 – 大概用一年时间(不包括进院观察)。而我已做了两次疗程。。明天是我第三次,以下是我这次的疗程:
a) 4 June 08 - 7 June 08 (4 days) - 休息(3 days)
b) 11 June 08 - 14 June 08 (4 days) - 休息(3 days)
c) 18 June 08 - 21 June 08 (4 days) - 休息(3 days)
d) 25 June 08 - 28 June 08 (4 days)

在18June08开始我就要做Radiation头脑部分为期两个星期,也就是会有影响记忆的疗程哦 (lost some memory side effect)
希望一切都顺利吧!由于这次疗程很多,所以这次不再update我进院出院了。。

Thursday, May 15, 2008

我出院了!!!

话不多说, 我出院了!!!!
I will be resting at home for 2 weeks.... horray...

Wednesday, May 7, 2008

我发烧了!!!!

医生一开始就已经事先告诉我,第二次的的疗程会有所跳动, 还说这次的药会比之前来得重... 这应该是会先苦后甜吧!!! 我还以为第二次的疗程会很顺利,怎知道好戏在后头... 医生预算我的血读数在疗程的几天后一定会下降而且还会有发烧的状况。所以疗程完了就先让我出院。只要我的NEU少过0.5就要立刻进院。

上个星期到医院验血,我的报告都很理想,有3.56 的读数,医生还开玩笑说着:我们还没有进药噢!!! 那刻,我的心里还挺高兴的。那里知道上个星期五验血过后,我的血level既然降到0.004。

医生还立刻安排了一间personal ward 给我,因为我的血降到非常的底,但是偏偏就没有多余的私人房。昨天(5 May), 我的血球降到0, 直到中午,我发烧了,烧到39.2c。护士说,如果是小孩,一定会烧到脑了。

原来这种发烧真的不好受。它会突然全身发抖... 完全控制不到... 但是我的头脑还是清醒的。幸好二姐一直在旁照顾我。我全身发抖了十五分钟后,就会呕吐一轮。哇,超那命啊!!!

头发又开始脱落了,就如二姐说,一切都会过去的。至少我知道,这种发烧果然很刺激,所以我只好乖乖的在医院休养吧!!!!

Friday, May 2, 2008

我又进院了

我又进院观察咯!!!
我果然逃不过医生的神算,我的blood level will be dropped for this week, 所以,没办法了,我还是得进院去修行 --- 好让我的blood level 恢复正常水平才可出山!!!!!

Sunday, April 27, 2008

我可以出院了!!

我可以出院咯!!! Anyway...I may need to admit to hospital next week... It's all need to depend to doctor's decision. 这次还蛮顺利的....
但是还是需要在家多多休息!!! 在医院里有收获噢, 警察刚好到医院做拜访,所以每人有一份礼蓝。

Monday, April 21, 2008

2nd Phase of Chemoterapy Treatment

Yahoo!!! Doctor mentioned that my blood level became normal. Therefore, I have admitted to hospital for my 2nd phase of chemotherapy - for 1 - 2 weeks.

I will be starting my journey again!!!!
This time of chemoteraphy treatment will be more hebat.. and I vomited a lot!!!

Thursday, April 17, 2008

Good news to share

I have a good news to share with you... My chemotherapy treatment is in a good progress… I will be going for a blood test next week to decide when I need to undergo the second phase of the cycle 1 treatment (induction). Hahahaha.. I got another bonus week to rest at home, rather stay in hospital... Emm.. and I am getting usual with this treatment liao..

Besides that, my friends from West Malaysia came to visit me last Monday. Thanks for everyone's support...

Monday, April 14, 2008

先下手为强!!

哈哈..... I am READY!!! 等你脱,不如把你剪去!!!
It's my new botak look!!!







监狱风云


Saturday, April 12, 2008

我的近况

首先,除了谢谢大家的关心之外还要说声对不起... 因为我的标题让大家都很紧张... 其实在这一段日子里我都过的比平常人还要好... 只不过疗程和医院的环境有一点儿难受... 但这已经是习惯成自然了... 昨天还回去医院抽骨髓(幸好一点也不痛但是会非常的累,因为我需要抽两份sample,一个给本地实验,另一个要送去新加坡 – 因为之前在KL寄去的骨髓有问题所以需要重抽)好像回到自己另一家那样... 因为有好多盟友都在那... :)

在家休息了几天,整个人的精神都越来越好了,开胃了很多.. 但是又好奇怪.. 我又瘦了... 哈哈.. 真是搞不清楚.. 很奇妙吧.... 给我多一点时间吧... 我不会让自己瘦弱下去的 :P

其实很多感激的话,大家都听厌了.. 但我心里真的很慚愧和感动... 因为我的信心能继续维持下去都是有你们的爱心... 我只能不客气的接受你们的爱... 谢谢你们不间断的支持和不放弃我... 放心我也不会输给大家的... 我会更坚强的 :)

也许很多人会有一些疑问... 关于我的病情来历, 疗程,骨髓移植等等的问题... 因为我的语言能力有限所以我还是用一些英文来交代。但是我要说的是, 这一切都来的刚好... 因为它来的时候刚好是在我没有什么生活负担, 工作单位或是一些感情的问题存在...(所谓人又开始到中年,事业刚刚要转,也没有负债,最重要的我还是单身 – 不然,她必定会很辛苦...)但是让我最不安心的还是一个永远把我当成小孩的爸爸妈妈( 没办法,我是家里的唯一男丁 ) 尤其是我妈,当我得了这个病后, 我第一个想起的就是我妈,因为她是一个很不镇定的人。 所以我也选择了回来家乡地方就医。也是为了不让她和家人担忧和辛苦.... 但愿妈妈可以慢慢习惯成自然吧....

生老病死, 是每一个人都必须要经历的过程.. 没有人可以预料你有多长命,有多健康及长寿.... 但我对这一切都以平常心看待... 你们的行动让我觉得在这29年零4月里的日子是没有白过的... 很感激你们... 所以我想老天爷应该会放我一马,让我在这段时间里锻炼身心... 大家要等我哦... ;)


--------------------------------------------------------------

It was nothing special after I was discharged from hospital. I am having some side effects, such as tiredness, headache, weight loss and etc..... However, everything is still under my control… no worries. I really have no idea how to describe the feelings to my lovely friends, colleagues, aunty, uncle and family members.... The only thing I must do is, to RECOVER as soonest as possible. A big thanks to everyone, for your donations, gifts, concern and encouragement. I will “ACCEPT” these in this moment and I promise that I will not be disappointing all of you.

Hereby, I would like to share my history and my understanding of my sickness.

a) Sick Name: Acute Lymphoblastic Leukaemia ( ALL - B type) – fast growing blood cancer.

- How I get it?
· Good question, God’s gift.......hahahaha...In this moment, nobody can be CONFIRMED that on how I can get this type of sickness. According to my studies, there are a number of risk factors that might causes of ALL, these are : -
· Radiation
· Genetic conditions
· Exposure to chemicals
· Infection
No worries, none of them are my factor...

· I went through a body checked up in the mid of January 2008 and my health was in good condition before I have been diagnosis as a leukemia patient.

· My first symptom for this sickness was: I was looking pale and my neck was aching when I went back to Tawau for CNY’s celebration. I thought it was my pillow that caused the painful (started on the first day of CNY).

· I had visited a lot of doctors – about 6 times (Chinese or western) in my home town and Kuala Lumpur. However, they were only diagnosed that my body condition was “HOT” and everything was OK. I had consulted a Chinese doctor lastly and he had advised me to go for a blood test. After the test, I found out that the numbers of my white blood cells were super high and my red blood cells were very low. I was advised to admit to hospital immediately, in that moment, I was not aware the seriousness of my sickness. I was still ”lengah-lengah” and had watched two episodes of the Harry Potter before I admitted to Sunway Medical Center. (Time : 26 Feb 08)

· After 4 packs of blood transfusion and a bone marrow had taken for further diagnose, doctor had advised me to undergo the treatment ASAP due to my cancer is acute type and it will become worst in a short period.

- Treatment

· I had decided to have my chemotherapy treatment in Sabah due to my family members, especially my mother can be easily take care of me. This is no longer my personal issue but is a family issue. Moreover, the government hospital fees can be covered from my insurances.

ALL occurs more frequently in children (under 15 years of age) than adults. When it occurs in teenagers or adults, ALL is more common between the ages of 15–25 and in older people. It is slightly more common in males than in females.




Attached below is my disease : ALL (Type B)


Treament Schedule
* The normal treatment that I need to pass thru : -
Hereby is my treatment schedule. It is subjectable to change and it will depend on my body condition and the response to the chemotherapy treatment.


Please bear in mind, I might not be following the entire schedule which has been listed on what they called “HIGH RISK PROTOCOL for ALL), it will depends body weight, height, body condition and etc. So, let’s see how the exciting in my journey is.

Below is the famous LP needle that I need to do every time while I admit to hospital... and the bone marrow test as well.


For your reference. The CURE status.


That’s all I can share with you.... There are still a lot of information and treatments related to my sickness which I am still taking my time to study now. Please bear in mind that, my sharing / understanding on this sickness might not 100% correct.. so for any further information, please search online.. hahaha..


See you guys......Next week will be my 2/3 of induction chemo :P

Friday, April 4, 2008

Discharged from Hospital

Horray... 我可以出院了!!!!!

Sunday, March 30, 2008

彷徨的日子

犹疑了很久...不知道还要不要让你们知道我更新的情况。因为我的生活已经没什么新意了,不是等吃,等睡,等被插,就是等下药...几天前还要一些呕吐呢..
现在的我,很怕看到部落格里的每一句话,每一个留言,因为你们的鼓励都会让我感动得流泪...不知何时何日,我已经可以很感性了... 不是性感噢!! 我还要做“信心强人”叻... :P

我不再发照片了,因为无情的发丝已经有开始脱落的现象... 希望它们可以“挺”多两周吧!!! 所以,两周过后,就有八卦新闻了... 到时贫僧会给大家分享一些人生哲学道理咯!! 哈哈!! 我在这里认识了两个同命的大哥,他们都很照顾我,所以大家也不需那么担心了。在这里什么情景都有,好的,坏的,走的安详的,回去的,回头的... 一一都有.... 不过,你们放心,我还好好的....

Hi my colleagues and friends,
I feel sorry to have made you all worried about me. I understand that some of you even look for a translator to read my blog. I really appreciate everyone's concern. I have learned a very useful tips in my previous company, which is, "Project can be failure, but it cannot be failed in my hand".. I will be applying this to my work and life as well.. Therefore, I will not fail in this mission.

Please bear in mind, if there is no news from me, it means that I have a good news!!! Thanks guys.. wish you all be happy and healthy... always.

Friday, March 21, 2008

沉闷的心情

都已经差不多两个星期关在这笼子里,沉闷的心情慢慢和我说哈罗了。幸好沙巴这里有公共假日,所以有朋友刻意坐飞机来探我及送上很大的温情。真的不知该怎么谢谢和报答,尤其是一些完全不认识我的人。
其实,我更觉得很难受因为大家对我太好了,心里很惭愧,也很想哭。
但是,我对自己说过,我没那么差劲而且很有信心会和我的家人一起走过去.....
我只有跟大家说:我不会令大家失望的。
Chemo 方面,今天会开始十天的不停的放药....看看那些“朋友”会来找我吧!!??
看来艺术的样子是不适合我 :-P 加油加油!!

Monday, March 17, 2008

我瘦了!!

不知不觉在这里躺了一个星期,房间一直没被换过,但也慢慢习惯了。
只是颈项的疼痛一直都不肯放过我,害我一直躺在床上。
我希望能通过这一关,Induction Chemo (Cycle 1)...

从没生病算起,我已经瘦了12kg.....

无论如何,谢谢你们,我还是有信心的:)

Friday, March 14, 2008

我被隔离了!!


这就是政府医院的隔离方法!!!!!

Thursday, March 13, 2008

人生的考验

Thanks to my teacher, my boss, colleagues, buddies and friends. I have been getting a lot of support and encouragement from all of you. I felt touched and much appreciated that.

Moving a step forward toward the chemotherapy treatment; a step closer to the side effect. Waooo.. God love me and would like to let me have some, which is more and different with others, however it is not easy to accept this weird theory!! 神的考验未免太苛求吧!!!It's really a challenging journey in my life. Dont't worry, my motto in my life is - To be confident.

See you guys and take a good care of your health. Don't ever try to join my team.. hahaha.. (My "misal" smart boh?)



Wednesday, March 12, 2008

No Title

I only admitted to 3rd class ward due to the fully booked. Besides that, I might be getting my 1st class ward by this week. Doctor will be starting to inject the brain prevention dose on me..
在这government hospital里,真的超闷。。。。What to do!!

First Chemotherapy Treatment

I have completed my first chemotherapy treatment yesterday and will have the second treatment after 10 days. Now, i just have to see if there are any side affects during this period.

Sunday, March 9, 2008

Before & After

还以为剪短发会很难接受。Cheah...也不是那个衰样。没惊喜!!
嘿嘿嘿..... 还好还好

Saturday, March 8, 2008

Thursday, March 6, 2008

Rest in Hospital

I will be starting my first Chemotherapy treatment next Monday. This treatment will take 5 weeks to complete. To have a more privacy, I am requesting for an upgrade of my ward to first class which only cost me RM80 per day.

Besides undergoing the chemotherapy treatment, an additional treatment will be given to me, which is radiotherapy to the brain. The side effect for this treatment is that there is a possibility for me to lost part of my memories. Anyway... I hope that I still can remember the good & sweet memories with all of you. Please don't blame me if I can't recognise you in future :P

I will be going to barber this Sunday and will post my leng chai photo here...

加油! 加油!

Wednesday, March 5, 2008

A Thousand Thanks

A Thousand Thanks,
To everyone - for your donations, gifts, concern and encouragement.
My current financial status is still manageable; anyway, thanks to my friends who had contributed in terms of money.

Thanks again, I feel blessed and am grateful to have my family and friends indeed who always support me in my life. I appreciated every single effort you put in for me.

Cheers,
Kachu Kachu

Boring Day

Today is such a boring day for me. I spent the day sleeping at home.
Went to Sabah Medical Center yesterday; they do not have any hematology division! Dr Lily Wong is the only doctor who can cure me in Sabah.

I will stick with my previous plan and check in to hospital tomorrow to consult Dr Lily Wong.

No worries. I am in good condition now. Thanks.

Tuesday, March 4, 2008

2nd Day in KK @ 4 March 08

I've gotten some information regarding this chemotherapy treatment and have decided to admit myself into the hospital next Monday. I will still consult Dr Lily Wong on this Thursday.
The chemotherapy treatment here differs with Sunway, and will take 1 year… Cham..

Monday, March 3, 2008

The First day in KK @ 3 March 08

Making my way to Queen Elizabeth Hospital (QEH) to seek for Dr Lily Wong's advise. Unfortunately, Dr Lily Wong was not around and would only be back to KK this Thursday.
I consulted another doctor instead - Dr Jerome. He is Dr Lily Wong’s backup. He told me that the Chemotheraphy treatment would take 1 year. This contradicted with the doctor at Sunway who had told me that it would only be for 6 months. Dr Jerome did not seem too convincing to me as he was unable to answer most of the questions which I raised, such as, how many cycles would be needed for this Chemo, are there any backup plans (bone marrow transplantation), etc.

Dr Jerome advised me to list down all my questions and to check with Dr Lily again this Thursday. As my illness is acute, Dr Jerome has advised that I be admitted into the hospital this Wednesday in order to go through a body check out while waiting for Dr Lily Wong. Thus, I will be checking into the hospital on either this Wednesday or next Monday. I’m still too puzzled to be able to make a decision now.

While waiting for Dr Lily, I will be going to the Sabah Medical Center tomorrow to seek a second medical opinion. Hopefully this will help me decide about my treatment. I need to understand deeply how many cycle for this Chemotherapy and if there any other options which can cure my sickness. 1 year is such a long period for me.

I'm quite tired today and even lost my temper at the taxi driver. The distance from the hospital to my sister's house is quite nearby. However, the driver wanted to charge me Rm15. Soooo.. I'm reluctant to pay him and called my kompakar colleague to send me back.. thanks oooo... :)

Journey to Kota Kinabalu @ 2 March 08


Thanks to my buddies who came to LCCT last Sunday. I promise, I will take care of myself.